For Eleven Years, He Put His Own Life on Hold for His Brother—Then One Phone Call Made Him Wonder How Much Loyalty One Person Can Carry
I still have the brochure for the train trip in a drawer under my socks.
It’s folded into quarters and has a coffee ring on the front. “California Zephyr,” big picture of mountains, little sleeping car diagram. I ordered it eleven years ago, back when I was forty-seven and had this idea that I’d take the train from Chicago to California, rent a car, and spend a few weeks seeing places I’d never made time to see.
I wasn’t trying to reinvent myself. I’d been divorced for two years, my daughter was grown and living in Minneapolis, and I’d spent nearly thirty years working maintenance for the county school district in Ohio. I just wanted something that belonged to me.
Then my younger brother, Eric, got sick.
It started with complications from diabetes. He was only forty-four at the time, but he had never really taken care of himself. He’d skip appointments, eat whatever was cheap, tell everyone he felt fine until he very obviously didn’t. After a hospital stay, he lost part of his foot. Then he couldn’t keep working construction. Then his marriage, which had already been shaky, fell apart.
Our parents were both gone by then. Eric had two kids, but they were teenagers and living mostly with their mom. He had nobody nearby except me.
So I helped. Of course I did.
At first it was rides to appointments and picking up prescriptions. I installed grab bars in his bathroom. I took him grocery shopping because he said the delivery fees were ridiculous. I helped him fill out disability paperwork, which took three tries because he kept losing the letters they sent him.
My train trip got pushed to the following spring. Then the spring after that.
People like to say, “You don’t have to do everything.” That sounds very reasonable when you aren’t the person getting a call at 6:10 in the morning because your brother fell trying to get from the couch to the bathroom and is embarrassed to call an ambulance.
You do what needs doing. Then you do it again.
I moved into a small ranch house on the edge of Dayton after my divorce. It was supposed to be a fresh start, although that phrase always sounded a little corny to me. I had a spare bedroom, so when Eric got evicted from his apartment after missing rent, he moved in “for a few months.”
That was eight years ago.
He pays what he can from his disability check. Some months, it’s $250. Other months, it’s nothing because he needs something—new shoes that fit around swelling, a copay, a phone bill he forgot about, a replacement remote because he spilled soda on the old one.
I’m not saying he does nothing. He does dishes sometimes. He folds laundry sitting at the kitchen table. He knows all the answers on Jeopardy, or thinks he does. He’s funny when he’s in a good mood. My daughter, Hannah, loves him, even when he drives her crazy.
But I became the person who could not make plans without first figuring out who would be around for Eric.
When Hannah had her first baby, I drove to Minneapolis for four days and came home early because Eric said he had a stomach bug and couldn’t get off the couch. It turned out he’d eaten bad takeout. He was fine by the next afternoon, but by then I had already missed the day Hannah brought my grandson home from the hospital.
She didn’t yell at me. That almost made it worse.
She just said, “Dad, I know Uncle Eric needs help. But I need you to remember you’re my dad too.”
I thought about that sentence for months and still did the same things.
Last fall, a former coworker named Mike called and told me he and his wife were relocating to Arizona. He’d found out I was eligible to retire early with a smaller pension, and he said there were plenty of part-time maintenance jobs out there if I wanted one. Nothing glamorous. But warm winters, cheaper than people think if you stay outside Phoenix, hiking trails, a chance to breathe.
I laughed when he said it. Not because it wasn’t appealing. Because it was so obviously impossible.
Then, after we hung up, I sat in my truck outside Lowe’s and looked up apartments in Tucson for almost an hour.
I didn’t tell anybody for a while.
When I finally told Eric, I tried to make it sound less serious than it was. I said Mike had mentioned Arizona. I said maybe someday I’d like to spend a winter there. I said I wasn’t packing up tomorrow.
Eric stared at his TV for a long time.
Then he said, “So what, I’m supposed to go into one of those places?”
I said I didn’t know. I said we could look into home health services, maybe housing that was better set up for him. I said his kids were adults now and maybe they could help some. Not take him in, necessarily. Just help.
He gave this little laugh that wasn’t really a laugh.
“Yeah, okay. Everybody’s got their own life except me.”
That hit exactly where he knew it would.
I told him that wasn’t fair. He said he wasn’t trying to be fair. Then he apologized. Then I apologized too, somehow. By the end of the night, I was the one making him a grilled cheese because he said he hadn’t eaten.
A few weeks later, I drove to Cincinnati to look at a used camper van. It was nothing fancy. A 2018 Ford Transit conversion with too many miles and a dent near the back bumper. But it had a bed, a tiny sink, and enough space for a folding chair. I could have afforded it if I sold my house and was careful.
I didn’t buy it. I wasn’t even close to buying it. I just wanted to sit inside it and see whether I could imagine a life that wasn’t scheduled around someone else’s blood sugar, prescriptions, transportation, and moods.
On the drive home, Eric called.
He said his daughter, Kayla, had come by and asked whether he would consider moving closer to her in Kentucky. Her husband had a cousin who did wheelchair-accessible renovations. There might be an apartment available near her.
I pulled into a gas station and shut off the engine. I remember there was a guy washing his windshield at the next pump, over and over, even though it was already clean.
I said, “That sounds like a real possibility.”
Eric got quiet.
Then he said, “You talked to her about getting rid of me?”
I honestly didn’t know what to say. I had spoken to Kayla once, months earlier, and only because she asked how her dad was doing. I had never asked her to take him. I was too ashamed to even admit how much I wanted help.
“No,” I said. “I didn’t get rid of you. You’re my brother.”
“And I’m ruining your life, right?”
I lost my temper then. Not screaming, but close.
I said, “I don’t know, Eric. Sometimes I don’t know what my life even is anymore.”
There was silence. I could hear the television in the background at the house.
He hung up.
For two days, we barely spoke. I went to work, came home, made dinner, and ate standing at the counter because I didn’t want to sit in the same room with him. He stayed in his bedroom with the door mostly closed.
I felt awful. I also felt relieved, which made me feel worse.
Kayla came over that Saturday. She had brought donuts, like that was going to make the conversation less painful. We sat at my kitchen table and talked about waitlists, Medicaid applications, accessible apartments, transportation services. Real things. Boring things. Necessary things.
Eric didn’t agree to move. Not exactly.
But he agreed to visit the apartment in Kentucky next month.
I haven’t listed my house. I haven’t bought a camper van. The train brochure is still in the drawer, and I’m still working at the schools because retirement numbers are scary when you actually put them on paper.
But I did call Mike back. I told him Arizona was probably not happening this year.
He said, “Probably isn’t never.”
I wrote that down on the back of an old electric bill. It’s on the fridge now, partly covered by a pizza coupon and one of my grandson’s drawings.
Eric saw it yesterday and didn’t say anything. He just looked at it for a second, then asked if I could drive him to physical therapy on Thursday.
I told him I could.
And then I sat down at the kitchen table and made myself a list of things I need to ask before I agree to anything else.